Good podcast about chronic illness in general

Long COVID and the Blind Spots of American Medicine

Apple Podcasts Link

For patients with long COVID, chronic fatigue syndrome may offer a guiding star | New Hampshire Public Radio

Chan School event seeks way forward for long COVID patients – Harvard Gazette

My brother is interviewed in this piece about Long COVID

For some patients, long COVID is their new reality : NPR

Article about new vaccine ad that shows the toll of Long COVID on young people-Wash Post no paywall

Good use of NIH money at UMass

Liisa Selin and Anna Gil study links between viral infections and ME/CFS

50% of people who get COVID-19 have long-term effects

Wash. Post - no paywall

No answers, but these are good questions

is the threat of long covid an ongoing reason to avoid contracting the virus? Could endemic covid leave millions disabled with long-haul symptoms every year, creating a growing public health crisis?

WA Post no paywall

Column One: How does COVID-19 change the brain? This scientist is finding out - Los Angeles Times

Opinion | Long Covid and the Blind Spots of American Medicine - The New York Times

Supporting a Student with Long COVID, considerations for teachers

Specialized Health Needs for students with Long COVID

As students with long-haul covid return to school, many districts don’t fully know how to help

Good article about mRNA vaccines

The tangled history of mRNA vaccines

Your vaccine history may help with your COVID vaccine. Yes, all the vaccines, people!

A good start

NIH awards $470M to NYU to build long COVID-19 study population

Officials aim to enroll 40,000 participants as part of a combined population of new and existing study groups, in a meta-cohort called Recover, to investigate the mystery surrounding long COVID-19. 

New Recommendations Address ME/CFS Diagnosis and Management

The urgency of appropriate recognition and management of ME/CFS has increased as growing numbers of people are exhibiting signs and symptoms of ME/CFS following acute COVID-19 infection.

New Clinical Guidelines for ME/CFS

The clinicians make it clear that no treatments have been shown to be curative. Instead, they focus on advice for managing and treating symptoms like orthostatic intolerance, cognitive dysfunction, pain and sleep dysfunction.

The study

Risk factors and disease profile of post-vaccination SARS-CoV-2 infection in UK users of the COVID Symptom Study app: a prospective, community-based, nested, case-control study - The Lancet Infectious Diseases

Risk is cut, but not eliminated. We have to remain careful.

Vaccines cut risk of ‘long covid’ in half, major study finds

Excellent but anger-making article about Long COVID

COVID-19 Long-Haulers Are Fighting for Their Future - The Atlantic

They and other long-haulers want studies that treat long COVID holistically, rather than focusing on the single organ a researcher happens to specialize in. They want more attention to common symptoms, including neurological ones (which are among the scariest) and menstrual changes (which are among the most overlooked). And they want researchers to ask them what they already know.

I’ve been worrying about this:

The data from vaccinated Israeli medical staff shows that while breakthrough infections aren’t life-threatening, they are also not benign: 19 percent of cases led to so-called “long-haul COVID-19”

Everyone Needs a COVID-19 Booster Shot

But I can’t find evidence for this statistic

“It has been estimated that 10 percent of children who contract covid will have chronic symptoms such as heart conditions, decreased lung function and behavioral abnormalities. “

10 arguments to consider before calling long covid psychosomatic

10 arguments to consider before calling long covid psychosomatic. | by Jan Choutka | Aug, 2021 | Medium

We are in a situation where a large number of people worldwide are presenting with an illness that currently cannot be objectively explained. It seems that medicine was caught unprepared and that it doesn’t know what to do and what to think.

Interesting community science project

Characterizing long COVID in an international cohort: 7 months of symptoms and their impact - EClinicalMedicine

Brain imaging before and after COVID-19 in UK Biobank | medRxiv

We identified significant effects of COVID-19 in the brain with a loss of grey matter in the left parahippocampal gyrus, the left lateral orbitofrontal cortex and the left insula.